Panel Discussion

Hidden in Plain Sight: How Double-duty Caregiving (Professional and Personal Family Caregiving) Impacts Clinicians/Caregivers, Teams, Burnout, and Care


11:15 am - 12:30 pm

Danny van Leeuwen, RN, MPH

Patient/Caregiver Activist, Health Hats

A patient/caregiver activist learning with people traveling together toward best health, advising on what works for people in their health journey: informed decision-making, patient-centered research, communication at transitions of care, and technology supporting solutions created by and for people. Danny, known as Health Hats, wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40+ years, an informaticist, a QI leader, a mentor to leaders and advocates, a weekly blogger and podcaster for more than seven years at  He works with AHRQ, PCORI, NAM, NQF, CMS and other alphabet soup. At one point in Danny’s recent odyssey, he was a patient, a caregiver, a boss of caregivers, and in the C-suite, all at the same time. He’s survived a bit worse for wear.